“My flowers are doing particularly well”, I thought to myself. I wonder if it’s the watering, which I was doing at this time of night, around 7:30 pm, or is it the cooling weather? This past 2-3 days had been cool at night. I told my hubby that, “my cool weather is coming”….this in reference to the Fall-Winter season. I love cold weather! Even snow…
I was almost to the end of watering when something dawned on me… I hurried to finish watering and came abruptly inside, into the living room in which a big door to the outback by the pool is. Jim looked at me. He followed me with his eyes. I knew it because I felt it- but I didn’t “acknowledge’ this for ‘fear’, perhaps the wrong word- that I would forget what I came in in a hurry for should he say anything and I respond.
I had seen my Mother yesterday. I drove for 1 hour to take her to her “last” appointment with her doctor, a nice older, balding Filipino guy. My Mother was comfortable seeing him because they share the same country of origin. She can rattle on in mixed Bacon dialect-tagalog-English. I don’t know if she’d always been this way– but I think that my going with her makes her brave, gives her confidence, therefore makes her comfortable to ‘talk’. THAT I surmised from a comment she had made about my older sister, who she lives with in Los Angeles, altho Mother lived in the basement. My Mother had said, “V…. (for my sister’s privacy I won’t mention her name here…) when she takes me to the doctor she doesn’t come into the room with me. I don’t know why– maybe because she cannot talk with the doctors in good English so she doesn’t. It’s good that you’re the one taking me now…”
Yes I had started, or taken over the managing of her care. The very first day was when I took her to see Dr. I. on June 12, 2009. She had a biopsy of her pancreas, and liver.
This was the day that I, my sister, and her first doc found out for real– that yes, she does have pancreatic cancer, and it had now “metastasized” was the word I heard form Dr. Ihab the specialist doctor, into her liver.
I will write about that day later—————
The rush to come in from watering my plants this early balmy night was that I needed to write down what went on today and yesterday—
Mother had been seeing Dr. Villa since she moved in with my sister in LA, about 10 or so years ago now, I don’t remember… seems longer than that. Dr. Villa is her primary physician.
— and what happened, and what transpired, and what I had observed….. weighs heavy in my heart… HOW SAD!!!
Yesterday, August 18, 2009 was the “last visit” she is to have with her doc, Dr. Villa.
As I said– she rattled on with him- complaining about this, about that. In-between that rambling– seem like a woman, or a person, or a human being who finally found her voice and is testing it to see if she could get attention finally– I had to ask the good Doc how many month’s worth of medication she can take with her, and could the good Doc please write a letter for my sister Vi’s employer because they are asking for proof that indeed she is accompanying my Mother on the journey home…. home to the Philippines. For the last time. SHE IS GOING HOME TO DIE!! AND SHE DOES NOT KNOW IT!!
My sister and I had agreed not to tell her. We were afraid that she would fall into depression.
At least in this case, we made her believe that she should go take a vacation earlier. Jesse, our second to the youngest in the brood is also going on medical/vacation in Sept. so we told her it would be a perfect opportunity. Jesse works in Dubai. He is the 11th in the order of live birth my Mother had. I was 5th in there somewhere. Vi, my sister is the 2nd. The rest of the 12 live children, albeit one was adopted out to an uncle, all live in the Phil. and they are the reasons why Mother goes on vacation every Oct.
It is also Mother’s birthday on Sept. 20. She’ll be 83 (as old as her father, my grandfather was when he died, she posited this to me). I made her believe that it would be great if she can go home earlier than the Oct. annual time she normally goes, so that she is rested when they hold her birthday party. I also told her that Jesse is coming home a little earlier. both were correct, but I need for her to buy it.
You see– her doctor’s visit preceding this one, sometime in July was an emotional blow.
I took her in to see Dr. Villa because she was complaining of stomach ache. I actually didn’t know what I would find when I got to her place so I was very apprehensive already the day before, when I got this call from my sister to take her in. I got there– she was not ready so I waited for her to dress. I asked her how she’s feeling, and she said she had stomach pains the night before, and in fact almost blacked out again. Again– now there’s a story there too—-but I will tell later…..
The doc did all the standard questions about medications she’s taken, about bowel movements, about sleeping, about weight loss or not, about foods she’d eaten, on and on….
We found out that she had stopped taking all her medications for about 1 year now!! the cholesterol med, the diabetes med, the high blood med. Jaws agape, the Doc and I interrogated her as to why— her response was that she told the Doc on a prior visit to this one- that she would not take any medications until she went to see the Specialist Dr. Ihab. And she added that based on the finding of that procedure–this is when she was to have the biopsy on her pancreas– she would start taking the meds again. Well….
Her and Jesse have not seen each other for about 5-6 years I think. I always keep saying “I think” because I was not really so into her daily life before this diagnosis, before this disease.
I come to see her only when I’m in the neighborhood– like when my kids are with me for the week-end, and we want to eat Fil. food at The Max of Manila Restaurant near where she lives. Then we would stop by just long enough to see if she’s home. If she is and feeling like it– we would take her. If not– then I see her maybe once in 6 months.
Finally here it is– her last doc visit.
After all the rigmaroles (???), the letter to my sister’s employer, the meds she needs to take, the call to the pharmacist to get it all ready, one last order for a battery of lab tests for the doc, I honestly don’t know for what– but— ok.
As she exited the exam room into the passageway to the waiting room, the doc gave her a hug, and a kiss on the top of her head, and gave her some reassuring words– eat good, rest, etc etc. and enjoy her vacation.
I said goodbye to the doc in a nonchalant way. Menchi, his PA was right there making sure she said “goodbye” too, in her own way. She and the Doc are complicit in not telling my Mother. She and Mother had been together more than I had been…. The PA lived around the corner from my mother and whenever my mother had pain in the past–she went over to the PA’s house and bothered her. The PA would then get her an appointment, and take my Mother to work with her. Before she sat down for her job, she will see to my Mother on a bus. How the old woman knew and remembered where to get off is another story….
We went to the Lab to get the tests done. It was late dusk already- around 6 pm. The crazy Lab Tech couldn’t find a vein in which to insert his needle!!
We were told to come back early the next day. No need to line in he said….
As I was driving her home–she made an observation: “Dr. Villa was extra nice today, I wonder why??” I held my ground, I was not about to give her anything! I said, “why, is that??” She replied with, “well..no he was never that nice to me before. He gave me a hug and a kiss on top of my head…hmm…” To which I replied, “well– you’re going on vacation and he just wants to wish you well since he won’t be seeing you for a while…”
“I guess…” she said,and we left it at that.
I got home and told Jim this.
As to today, Aug. 19– going back for the Lab test, finally successful in sucking her dry of blood she said, we went back to Doctor’s office—- picked up the letter for Vi…
….then once more and again– the PA and the Patient said goodbye. Nice words from her–some joking, I jumped in with pleasantries….
Walking out the door, I hugged the PA again, I patted her chummy warm face in my palms…sorta “hey little sis, thank you so much, I will update you, I’ll call you…” and she said, “OK”, and we both knew what we meant, we were talking in codes in front of the person we were talking about that we were protecting from knowing, and who continue to smile at the PA as she said “bye” and “thank you” thinking she would see her again when she came back…
The PA lingered- her body half-way in, and half way out the door… and watch us walk away…. I could see her linger more, and watch us more…. but I declined to look back. We, my mother and I, are not done yet for the day…….
In Search of the Perfect Italian Shoe—
…doing the day with her, watching her go from one shoe display table to another shoe rack at Macy’s, looking for that perfect Italian leather shoes—
…it is very hard to know, let alone observe, and know in your gut, in your mind, in your heart, that this woman is so every sick–
“She has from 6 months to 2 years”, the Specialist said. “If she wants to go home, let her go now”.
“With this kind of disease it can go downhill fast from here, so if she wants to die “at home”, you better let her go now…”
It is unbelievable to watch her, still spritely, can still walk the length of the Galleria Mall from Macy’s to Nordstrom, to Baker’s, and everywhere in-between, and go to a restaurant and eat like nothing’s wrong—
How can this be??? Could it be that the doctors are wrong?? It cannot be that she’s got only 6 months from June, to live??? After all that is why we are sending her off….. she looks so normal…so alive…. so spritely….so….. I know I’d already said spritely….
How could this be???
Looking at this fragile woman that is my Mother…knowing what I know….and we are sending her home although Vi’s going with her, I know I didn’t want that job so she took it— grateful that she did…. I feel like we are cheating her, we are sneaking around her, we are lying to her…
She leaves August 23rd, on my daughter’s 20th birthday. I of course will be taking Mother and Vi to the airport, so the birthday will have to happen before that……
Death…….
Birth………
I just noticed just this moment– what I was writing about…… really. This is how it comes out:
Birth……..
….my daughter not a teen-ager anymore. I would have loved to be with her on that day. I remembered when it was me who turned 20. I was scared because I thought I was old! Old!!
Death…….
….when I see my Mother off….I would be seeing her for the last time. I won’t be going home for her funeral.
Why do I even have to write that word!!! My God!!!
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